Comment on Dr. Chung's Editorial: Pediatric Health Information Technology—What We Need for Optimal Care of Children

Background and Significance

Dr. Chung brings up an essential issue within the current US healthcare system.[1] While pediatric-specific electronic health records (EHR) systems do exist, many EHR systems were not built with pediatric patients or healthcare workers in mind.[2] Currently, a Health Level 7 (HL7, www.hl7.org) project is underway to create the HL7 Pediatric Care Health Information Technology Functional Profile Release 1 (HL7 PCHIT FP R1), a child health functional domain profile that will help address those needs.[3] The HL7 PCHIT FP R1 was developed based on feedback and direct involvement of pediatricians and representatives from HL7 (http://www.hl7.org/), the American Academy of Pediatrics, the Agency for Healthcare Research and Quality (AHRQ), and the Drummond Group (https://www.drummondgroup.com/).

Protection of Human and Animal Subjects

None.

Publication History

Received: 08 October 2021

Accepted: 09 November 2021

Article published online:
12 January 2022

• References

• 1 Chung S. Pediatric health information technology—what we need for optimal care of children. Appl Clin Inform 2021; 12: 708-709
• 2 Nakamura MM, Harper MB, Castro AV, Yu Jr FB, Jha AK. Impact of the meaningful use incentive program on electronic health record adoption by US children's hospitals. J Am Med Inform Assoc 2015; 22 (02) 390-398
• 3 Yu F. Pediatric Care Health IT Functional Profile. [Online] HL7, 9 7. 2021 . [Cited: 9 13, 2021.] Accessed November 30, 2021: https://confluence.hl7.org/display/EHR/Pediatric+Care+Health+IT+Functional+Profile+-+Project
• 4 Technical Committee ISO/TC 215, Health Informatics. ISO/HL7 10781:2015(en) Health Informatics—HL7 Electronic Health Records-System Functional Model, Release 2 (EHR FM). [Online] ISO/HL7, 2015. [Cited: 9 8, 2021.] Accessed November 30, 2021: https://www.iso.org/obp/ui/#iso:std:iso-hl7:10781:ed-2:v1:en
• 5 Classen DC, Kuhl J, Spooner S.Andrew. HL7 EHR Child Health Functional Profile (CHFP), Release 1. [Online]. 2008 . [Cited: 9 8, 2021.] Accessed November 30, 2021: https://www.hl7.org/implement/standards/product_brief.cfm?product_id=15
• 6 Wald JS. Children's EHR Format Enhancement: Final Recommendation Report. [Online] Nov 2015. [Cited: 9 8, 2021.] Accessed November 30, 2021: https://ushik.ahrq.gov/mdr/static_files/portals/cehrf/documents/2015PL/5_5_Final_Rec_Rpt_ChildrenEHR_Abridged.pdf
• 7 ONC. Pediatric Health Information Technology: Pediatric HealthCare Provider Informational Resource. healthit.gov. [Online] Dec 2020. [Cited: 9 8, 2021.] Accessed November 30, 2021: https://www.healthit.gov/sites/default/files/page/2020-12/Pediatric_HealthIT_Provider_IR_Interactive_508.pdf
• 8 Electronic Health Records Workgroup. HL7 Electronic Health Record System Functional Model (EHR-S FM) Release 2.1. HL7.org. [Online] 6 30, 2020. [Cited: 9 8, 2021.] Accessed November 30, 2021: https://www.hl7.org/implement/standards/product_brief.cfm?product_id=528
• 9 Fossa AJ, Bell SK, DesRoches C. OpenNotes and shared decision making: a growing practice in clinical transparency and how it can support patient-centered care. J Am Med Inform Assoc 2018; 25 (09) 1153-1159
• 10 rgeois FC, DesRoches CM, Bell SK. Ethical challenges raised by OpenNotes for pediatric and adolescent patients. Pediatrics 2018; 141 (06) e20172745
• 11 CDC. Family Educational Right and Privacy Act (FERPA). cdc.gov. [Online] 9 14, 2018. [Cited: 9 12, 2021.] Accessed November 30, 2021: https://www.cdc.gov/phlp/publications/topic/ferpa.html