CC BY-NC-ND 4.0 · Appl Clin Inform 2021; 12(03): 664-674
DOI: 10.1055/s-0041-1732424
Research Article

Provider Preferences for Patient-Generated Health Data Displays in Pediatric Asthma: A Participatory Design Approach

Victoria L. Tiase
1  College of Nursing, University of Utah, Salt Lake City, Utah, United States
2  The Value Institute, NewYork-Presbyterian Hospital, New York, New York, United States
,
Sarah E. Wawrzynski
1  College of Nursing, University of Utah, Salt Lake City, Utah, United States
,
Katherine A. Sward
1  College of Nursing, University of Utah, Salt Lake City, Utah, United States
,
Guilherme Del Fiol
3  Department of Biomedical Informatics, University of Utah, Salt Lake City, Utah, United States
,
Catherine Staes
1  College of Nursing, University of Utah, Salt Lake City, Utah, United States
,
Charlene Weir
3  Department of Biomedical Informatics, University of Utah, Salt Lake City, Utah, United States
,
Mollie R. Cummins
1  College of Nursing, University of Utah, Salt Lake City, Utah, United States
› Author Affiliations
Funding None.

Abstract

Objective There is a lack of evidence on how to best integrate patient-generated health data (PGHD) into electronic health record (EHR) systems in a way that supports provider needs, preferences, and workflows. The purpose of this study was to investigate provider preferences for the graphical display of pediatric asthma PGHD to support decisions and information needs in the outpatient setting.

Methods In December 2019, we conducted a formative evaluation of information display prototypes using an iterative, participatory design process. Using multiple types of PGHD, we created two case-based vignettes for pediatric asthma and designed accompanying displays to support treatment decisions. Semi-structured interviews and questionnaires with six participants were used to evaluate the display usability and determine provider preferences.

Results We identified provider preferences for display features, such as the use of color to indicate different levels of abnormality, the use of patterns to trend PGHD over time, and the display of environmental data. Preferences for display content included the amount of information and the relationship between data elements.

Conclusion Overall, provider preferences for PGHD include a desire for greater detail, additional sources, and visual integration with relevant EHR data. In the design of PGHD displays, it appears that the visual synthesis of multiple PGHD elements facilitates the interpretation of the PGHD. Clinicians likely need more information to make treatment decisions when PGHD displays are introduced into practice. Future work should include the development of interactive interface displays with full integration of PGHD into EHR systems.

Protection of Human and Animal Subjects

The study was performed in compliance with the World Medical Association Declaration of Helsinki on Ethical Principles for Medical Research Involving Human Subjects and was reviewed by University of Utah Institutional Review Board.




Publication History

Received: 17 April 2021

Accepted: 13 June 2021

Publication Date:
21 July 2021 (online)

© 2021. The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/)

Georg Thieme Verlag KG
Rüdigerstraße 14, 70469 Stuttgart, Germany