Semin Speech Lang 2017; 38(04): 313-320
DOI: 10.1055/s-0037-1604278
Review Article
Thieme Medical Publishers 333 Seventh Avenue, New York, NY 10001, USA.

Family Leisure as a Context to Support Augmentative and Alternative Communication Intervention for Young Children with Complex Communication Needs

Tara O'Neill
1   Department of Communication Sciences and Disorders, The Pennsylvania State University, University Park, Pennsylvania
,
Kelsey Mandak
1   Department of Communication Sciences and Disorders, The Pennsylvania State University, University Park, Pennsylvania
,
Krista M. Wilkinson
1   Department of Communication Sciences and Disorders, The Pennsylvania State University, University Park, Pennsylvania
2   Shriver Center of the University of Massachusetts Medical School, Baltimore, Maryland
› Author Affiliations
Further Information

Publication History

Publication Date:
11 September 2017 (online)

Abstract

Families are often the most significant communication partners for children who require augmentative and alternative communication (AAC). Because family-centered approaches are recommended practice in speech-language pathology, a primary role for speech-language pathologists (SLPs) serving children who require AAC is to support families in integrating communication into highly valued, existing family activities. Family leisure activities can provide a naturally supportive context for AAC, because they provide multiple opportunities for children to interact and practice using AAC with natural communication partners. This article aims to guide SLPs in utilizing family leisure as a context for AAC intervention. We describe the benefits and constraints of engaging in leisure for families with children with disabilities. We define family leisure, which includes two distinct types of leisure activities: core and balance. Finally, we provide a case example of a family that highlights the integration of AAC into both types of leisure activities.

 
  • References

  • 1 Hicks M, Ferguson S, Bernier F, Lemay JF. A case report of monozygotic twins with Smith-Magenis syndrome. J Dev Behav Pediatr 2008; 29 (01) 42-46
  • 2 Romski M, Sevcik RA, Barton-Hulsey A, Whitmore AS. Early intervention and AAC: what a difference 30 years makes. Augment Altern Commun 2015; 31 (03) 181-202
  • 3 Granlund M, Björck-Akesson E, Wilder J, Ylvén R. AAC interventions for children in a family environment: implementing evidence in practice. Augment Altern Commun 2008; 24 (03) 207-219
  • 4 Woods JJ, Wilcox MJ, Friedman M, Murch T. Collaborative consultation in natural environments: strategies to enhance family-centered supports and services. Lang Speech Hear Serv Sch 2011; 42 (03) 379-392
  • 5 Beukelman D, Mirenda P. Principles of assessment. In: Beukelman D, Mirenda P. , eds. Augmentative and Alternative Communication: Supporting Children and Adults with Complex Communication Needs. Baltimore, MD: Paul H. Brookes; 2013: 101-130
  • 6 Mandak K, O'Neill T, Light J, Fosco GM. Bridging the gap from values to actions: a family systems framework for family-centered AAC services. Augment Altern Commun 2017; 33 (01) 32-41
  • 7 Dodd DCH, Zabriskie RB, Widmer MA, Eggett D. Contributions of family leisure to family functioning among families that include children with developmental disabilities. J Leis Res 2009; 41: 261-286
  • 8 Snyder KA. A vocabulary of motives: understanding how parents define quality time. J Marriage Fam 2007; 69: 320-340
  • 9 Shaw SM, Dawson D. Purposive leisure: examining parental discourses on family activities. Leis Sci 2001; 23: 217-231
  • 10 Agate JR, Zabriskie RB, Agate ST, Poff R. Family leisure satisfaction and satisfaction with family life. J Leis Res 2009; 41: 205-233
  • 11 Mactavish JB, Schleien SJ. Re-injecting spontaneity and balance in family life: parents' perspectives on recreation in families that include children with developmental disability. J Intellect Disabil Res 2004; 48 (Pt 2): 123-141
  • 12 Smith KM, Freeman PA, Zabriskie RB. An examination of family communication within the core and balance model of family leisure functioning. Fam Relat 2009; 58: 79-90
  • 13 Churchill SL, Clark VLP, Prochaska-Cue K, Creswell JW, Ontai-Grzebik L. How rural low-income families have fun: a grounded theory study. J Leis Res 2007; 39: 271-294
  • 14 Christenson OD, Zabriskie RB, Eggett DL, Freeman PA. Family acculturation, family leisure involvement, and family functioning among Mexican-Americans. J Leis Res 2006; 38: 475-495
  • 15 Hornberger LB, Zabriskie RB, Freeman P. Contributions of family leisure to family functioning among single-parent families. Leis Sci 2010; 32: 143-161
  • 16 Hodge CJ, Zabriskie RB, Townsend JA, Eggett DL, Poff R. Family leisure functioning: a cross-national study. Leis Sci 2016; 1-22 . http://dx.doi.org/10.1080/01490400.2016.1203847
  • 17 Mactavish JB, Schleien SJ. Playing together growing together: parent's perspectives on the benefits of family recreation in families that include children with a developmental disability. Ther Recreation J 1998; 32: 207-230
  • 18 Wilcox MJ, Woods J. Participation as a basis for developing early intervention outcomes. Lang Speech Hear Serv Sch 2011; 42 (03) 365-378
  • 19 Minuchin P. Families and individual development: provocations from the field of family therapy. Child Dev 1985; 56 (02) 289-302
  • 20 Zabriskie RB, McCormick BP. The influences of family leisure patterns on perceptions of family functioning. Fam Relat 2001; 50: 281-289
  • 21 Kashinath S, Woods J, Goldstein H. Enhancing generalized teaching strategy use in daily routines by parents of children with autism. J Speech Lang Hear Res 2006; 49 (03) 466-485
  • 22 Swanson J, Raab M, Roper N, Dunst CJ. Promoting young children's participation in interest-based everyday learning activities. Case Tools 2006; 2: 1-7
  • 23 Woods-Cripe JJ, Lindeman DP. Family-guided approaches to collaborative early intervention training and services. Available at: https://facets.ku.edu/training-modules . Accessed February 12, 2012
  • 24 Light J, McNaughton D. Supporting the communication, language, and literacy development of children with complex communication needs: state of the science and future research priorities. Assist Technol 2011; 24 (01) 34-44
  • 25 Light J, Smith AK. Home literacy experiences of preschoolers who use AAC systems and of their nondisabled peers. Augment Altern Commun 1993; 9: 10-25
  • 26 Light J, Page R, Curran J, Pitkin L. Children's ideas for the design of AAC assistive technologies for young children with complex communication needs. Augment Altern Commun 2007; 23 (04) 274-287
  • 27 Mesibov G, Shea V, Schloper E. The TEACCH Approach to Autism Spectrum Disorders. New York, NY: Plenum Books; 2005