Abstract
Primary progressive aphasia (PPA) is a neurodegenerative syndrome characterized by
insidious language deterioration. This young-onset disorder leaves adults with reduced
communication skills for participation in social activities. There is limited evidence
regarding group treatment for individuals with PPA, though the principles of chronic
aphasia groups can be applied to this clinical population. We developed a PPA group
treatment model incorporating compensatory strategies from augmentative and alternative
communication (AAC), communication partner training from aphasia rehabilitation, and
systematic instruction from dementia management. Six modules were designed and delivered
to people with PPA and their communication partners in a university clinic setting
over a 6-week period. Treatment was provided by graduate clinicians with supervision
from a certified speech–language pathologist and faculty member. Primary treatment
goals were to provide education about PPA symptoms and progression; to increase practice
and use of multimodal communication by people with PPA; and to establish an environment
where people with PPA and their partners could connect for training and support. We
present pre/post comparisons and satisfaction data provided by five individuals with
PPA and their partners in the group. Results suggest that group training is an effective
service delivery model. Participants reported gains in both knowledge about PPA and
in using many different modalities to communicate. The new compensatory strategies
learned provide tools for maintenance and improvement of language use. Participants
saw increased confidence and participation in daily activities, and highlighted the
value of the PPA group for individuals with this relatively rare condition and their
family members.
Keywords
Primary progressive aphasia - augmentative and alternative communication - group treatment
- multimodal communication - communication partner training
