Semin Speech Lang 2009; 30(3): 198-206
DOI: 10.1055/s-0029-1225956
© Thieme Medical Publishers

Discourses of Dementia: A Call for an Ethnographic, Action Research Approach to Care in Linguistically and Culturally Diverse Environments

Nicole Müller1 , Jacqueline A. Guendouzi2
  • 1Professor, Department of Communicative Disorders, University of Louisiana at Lafayette, Lafayette, Louisiana
  • 2Associate Professor, Department of Communication Sciences and Disorders, Southeastern Louisiana University, Hammond, Louisiana
Further Information

Publication History

Publication Date:
26 August 2009 (online)

ABSTRACT

The methods of ethnography and action research have much to offer to the field of speech-language pathology, particularly as our clinical populations are becoming increasingly diverse. We suggest that practicing speech-language pathologists and students, as well as researchers, will benefit from strategies that use the methods of participatory action research and ethnography as guiding principles to their work. Ethnography seeks to discover meaningful structures in a culture from the perspective of those whose culture it is. Action research, which shares a methodological basis with ethnography, is undertaken with the aim of improving the functioning of the social institution, practice, or structure investigated for the benefit of those most closely involved with that institution or practice. By way of illustration, we use data collected during fieldwork in Louisiana, involving persons with dementia from linguistically and culturally diverse backgrounds.

REFRENCES

  • 1 Alzheimer's Association .Minorities hardest hit by Alzheimer's. Washington, DC; Alzheimer's Association 2004 http://Available at: www.alz.org/national/documents/Minorities_English.pdf
  • 2 Alzheimer's Association .African-Americans and Alzheimer's disease: the silent epidemic. Washington, DC; Alzheimer's Association; n.d http://Available at: www.alz.org/national/documents/report_africanamericanssilentepidemic.pdf
  • 3 U.S. Census Bureau .Nearly 1-in-5 speak a foreign language at home. U.S. Census Bureau News, Report CB03–157. Washington, DC; U.S. Census Bureau 2003
  • 4 Centeno J G. Serving bilingual patients with aphasia: challenges, foundations and procedures.  Rev Logop Fon Audiol. 2009;  29 30-36
  • 5 Golander H, Raz A. The mask of dementia: images of ‘demented’ residents in a nursing ward.  Ageing Soc. 1996;  16 269-285
  • 6 Sabat S R. The Experience of Alzheimer's Disease. Oxford, United Kingdom; Blackwell 2001
  • 7 Guendouzi J A, Müller N. Approaches to Discourse in Dementia. Mahwah, NJ; Erlbaum 2006
  • 8 Bayles K A, Tomoeda C K. Cognitive-Communication Disorders of Dementia. San Diego, CA; Plural 2007
  • 9 American Psychiatric Association .Diagnostic and Statistical Manual of Mental Disorders (4th Edition, Text Revision). Washington, DC; American Psychiatric Association 2000
  • 10 World Health Organization .The ICD-10 Classification of Mental and Behavioural Disorders. Geneva, Switzerland; World Health Organization 1995
  • 11 Brookshire R H. Introduction to Neurogenic Communication Disorders. 7th ed. St. Louis, MO; Mosby Elsevier 2007
  • 12 Müller N. Dementia. In: Damico JS, Müller N, Ball MJ The Handbook of Language and Speech Disorders. Oxford, United Kingdom; Blackwell In press
  • 13 Salmon D P, Heindel W C, Butters N. Patterns of cognitive impairment in Alzheimer's disease and other dementing disorder. In: Lubinski R Dementia and Communication. San Diego, CA; Singular 1995: 37-46
  • 14 Becker J T, Overman A A. The memory deficit in Alzheimer's disease. In: Baddeley AD, Kopelman MD, Wilson BA The Handbook of Memory Disorders. New York, NY; Wiley 2002: 569-589
  • 15 Bayles K A, Tomoeda C K, Kaszniak A W, Stern L Z, Eagans K K. Verbal perseveration of dementia patients.  Brain Lang. 1985;  25(1) 102-116
  • 16 Kempler D. Language changes in dementia of the Alzheimer type. In: Lubinski R Dementia and Communication. San Diego, CA; Singular 1995: 98-114
  • 17 Ulatowska H, Chapman S B. Discourse studies. In: Lubinski R Dementia and Communication. San Diego, CA; Singular 1995: 115-132
  • 18 Damico J S, Simmons-Mackie N N. Qualitative research and speech-language pathology: a tutorial for the clinical realm.  Am J Speech Lang Pathol. 2003;  12(2) 131-143
  • 19 Westby C E. Ethnographic interviewing: asking the right questions to the right people in the right ways.  J Child Comm Disord. 1990;  13 101-111
  • 20 Simmons-Mackie N N, Damico J S. Qualitative methods in aphasia research: ethnography.  Aphasiology. 1999;  13 681-687
  • 21 Simmons N. An Ethnographic Investigation of Compensatory Strategies in Aphasia. Ann Arbor, MI; UMI Dissertation Services 1993
  • 22 Hymes D H. The ethnography of speaking. In: Gladwin T, Sturtevant WC Anthropology and Human Behavior. Washington, DC; Anthropological Society of Washington 1962
  • 23 Hymes D H. Towards ethnographies of communication: the analysis of communicative events. In: Giglioli PP Language and Social Context. Harmondsworth, United Kingdom; Penguin 1972: 21-44
  • 24 Malinowski B. The problem of meaning in primitive languages. 1923. Reprinted in: Ogden CK, Richards IA The Meaning of Meaning. London, United Kingdom; Routledge & Kegan Paul 1930: 296-336
  • 25 Lewin K. Action research and minority problems.  J Soc Issues. 1946;  2 34-46
  • 26 Hart E, Bond M. Action Research for Health and Social Care. Milton Keynes, United Kingdom; Open University Press 1995
  • 27 Hamilton H E. Conversations with an Alzheimer's Patient: An Interactional Sociolinguistic Study. Cambridge, United Kingdom; Cambridge University Press 1994
  • 28 Ramanathan V. Alzheimer Discourse: Some Sociolinguistic Dimensions. Mahwah, NJ; Erlbaum 1997
  • 29 Müller N. Aging with French: observations from South Louisiana.  J Cross Cult Gerontol. 2009;  24(2) 143-155
  • 30 Hawley H K. Analyzing Therapeutic Interactions: An Exploration of How Clinician Control Is Established and Maintained [dissertation]. Lafayette, LA; University of Louisiana at Lafayette 2005
  • 31 Hyltenstam K, Stroud C. Bilingualism in Alzheimer's dementia: two case studies. In: Hyltenstam K, Obler LK Bilingualism across the Lifespan: Aspects of Acquisition, Maturity and Loss. Cambridge, United Kingdom; Cambridge University Press 1989: 202-226
  • 32 Obler L K, deSanti S, Goldberger J. Bilingual dementia: pragmatic breakdown. In: Lubinski R Dementia and Communication. San Diego, CA; Singular 1995: 133-141
  • 33 Friedland D, Miller N. Language mixing in bilingual speakers with Alzheimer's dementia: a conversation analysis approach.  Aphasiology. 1999;  13 427-444
  • 34 Hopper T L. “They're just going to get worse anyway”: perspectives on rehabilitation for nursing home residents with dementia.  J Commun Disord. 2003;  36(5) 345-359
  • 35 Powell J A, Hale M A, Bayer A J. Symptoms of communication breakdown in dementia: carers' perceptions.  Eur J Disord Commun. 1995;  30(1) 65-75

Nicole MüllerD.Phil. 

Professor, Department of Communicative Disorders, University of Louisiana at Lafayette

PO Box 43170, Lafayette, LA 70508, USA

Email: nmueller@louisiana.edu

    >