DOI:
10.1055/s-00035026
Applied Clinical Informatics
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References
Rubinstein YR, Groft SC, Bartek R. et al.
Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB).
Contemp Clin Trials 2010;
31 (05) 394-404
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