Yearbook of Medical Informatics

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Courbier S, Dimond R, Bros-Facer V.
Share and protect our health data: An evidence based approach to rare disease patients’ perspectives on data sharing and data protection - Quantitative survey and recommendations [Internet]. Vol. 14.

Orphanet J Rare Dis 2019; [cited 2020 Feb 27];
14 (01) 175 Available from:
https://ojrd.biomedcentral.com/articles/10.1186/s13023-019-1123-4

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