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CC BY 4.0 · Arq Neuropsiquiatr 2024; 82(S 01): S1-S52
DOI: 10.1055/s-0044-1789404
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Use of mobile app to monitor patients with multiple sclerosis

Authors

  • Laisa Leite

    1   Oncoclínicas, São Paulo SP, Brazil.

  • Barbara Pereira Costa

    2   Instituto Sinapse de Neurociências Clínicas, Campinas SP, Brazil.

  • Lays Villar da Silva

    2   Instituto Sinapse de Neurociências Clínicas, Campinas SP, Brazil.

  • Ana Clara Morais Alves

    2   Instituto Sinapse de Neurociências Clínicas, Campinas SP, Brazil.

  • Lígia Aparecida Machado

    2   Instituto Sinapse de Neurociências Clínicas, Campinas SP, Brazil.

  • Carlos Bernardo Tauil

    3   Universidade de Brasília, Brasília DF, Brazil.
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    Address for correspondence: Carlos Bernardo Tauil (email: cbtauil@gmail.com).

    Abstract

    Advances and modernization of technology in healthcare have led to improvements in the treatment of serious, long-term illnesses such as multiple sclerosis (MS). Access to technological resources has facilitated the care and monitoring of patients undergoing treatment for MS and consequent adherence to the use of prescribed medications, in addition to controlling adverse reactions and monitoring relapses. Furthermore, it facilitates greater integration between the medical and multidisciplinary teams and the people with MS under monitoring. 1. Development of Clinical Protocols • MS Protocol • Development of Questionnaires (PHQ-9, GAD-7, AUDIT-C [alcohol use], NHANES [education], smoking [score], Epworth Sleepiness Scale, CSAT, Uhtlhoff phenomenon, sexual dysfunction, urinary and intestinal symptoms, sleep pattern, PDDS and MFIS) 2. Structuring dynamic forms • Data structuring of dynamic forms • Created dynamic historical record form for the patient’s medical record • Created dynamic Infusion Record form 3. Coupled the dynamic historical record form until patient inclusion • The clinical information already recorded on patients was recorded from diagnosis until the moment the form was filled out (Form information; Date of MS diagnosis, Phenotype, Outbreaks, EDSS, 9HPT, T2SFW, DMD, MRI, and other results) • Added the event (scheduling the infusion with the medication the patient used) • Added the infusion protocol (When the protocol is added, the patient receives preinfusion exam requests) • Infusion record (it is a dynamic form that the nursing team needs to fill out at each patient’s infusion with relevant data during the infusion, such as: date of current infusion, SVR, infusion cycle, medication, route of administration, complications during the infusion, among other information). The application proved to be useful for most people with multiple sclerosis who started using it regularly. The medical and multidisciplinary team also recognized benefits regarding patient monitoring.


     

    No conflict of interest has been declared by the author(s).

    Publication History

    Article published online:
    02 October 2024

    © 2024. The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution 4.0 International License, permitting copying and reproduction so long as the original work is given appropriate credit (https://creativecommons.org/licenses/by/4.0/)

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