Use of mobile app to monitor patients with multiple sclerosis

Address for correspondence: Carlos Bernardo Tauil (email: [e-mail]).

Abstract

Advances and modernization of technology in healthcare have led to improvements in the treatment of serious, long-term illnesses such as multiple sclerosis (MS). Access to technological resources has facilitated the care and monitoring of patients undergoing treatment for MS and consequent adherence to the use of prescribed medications, in addition to controlling adverse reactions and monitoring relapses. Furthermore, it facilitates greater integration between the medical and multidisciplinary teams and the people with MS under monitoring. 1. Development of Clinical Protocols • MS Protocol • Development of Questionnaires (PHQ-9, GAD-7, AUDIT-C [alcohol use], NHANES [education], smoking [score], Epworth Sleepiness Scale, CSAT, Uhtlhoff phenomenon, sexual dysfunction, urinary and intestinal symptoms, sleep pattern, PDDS and MFIS) 2. Structuring dynamic forms • Data structuring of dynamic forms • Created dynamic historical record form for the patient’s medical record • Created dynamic Infusion Record form 3. Coupled the dynamic historical record form until patient inclusion • The clinical information already recorded on patients was recorded from diagnosis until the moment the form was filled out (Form information; Date of MS diagnosis, Phenotype, Outbreaks, EDSS, 9HPT, T2SFW, DMD, MRI, and other results) • Added the event (scheduling the infusion with the medication the patient used) • Added the infusion protocol (When the protocol is added, the patient receives preinfusion exam requests) • Infusion record (it is a dynamic form that the nursing team needs to fill out at each patient’s infusion with relevant data during the infusion, such as: date of current infusion, SVR, infusion cycle, medication, route of administration, complications during the infusion, among other information). The application proved to be useful for most people with multiple sclerosis who started using it regularly. The medical and multidisciplinary team also recognized benefits regarding patient monitoring.

 

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Publikationsverlauf

Artikel online veröffentlicht:
02. Oktober 2024