ABSTRACT
In Canada, care for individuals with inherited bleeding disorders, including von Willebrand disease, is provided by 26 tertiary care multidisciplinary Inherited
Bleeding Disorders clinics geographically spread across the country. The Association
of Hemophilia Clinic Directors of Canada, the Canadian Association of Nurses in Hemophilia
Care, the Canadian Physiotherapists in Hemophilia Care, the Canadian Social Workers
in Hemophilia Care, and the Canadian Hemophilia Society all collaborate to provide
optimal management for patients with inherited bleeding disorders. The standards of
care for these patients were explicitly laid out in a 2007 document published by the
Canadian Hemophilia Standards Group (with representation from all of the groups just
mentioned) entitled Canadian Comprehensive Care Standards for Hemophilia and Other Inherited Bleeding
Disorders. Separate Canadian guidelines for the management of patients with Hemophilia and
von Willebrand disease also exist, focused on diagnosis, comprehensive care, assessment,
and treatment.
KEYWORDS
von Willebrand disease - diagnosis - management - Association of Hemophilia Clinic
Directors of Canada
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Paula JamesM.D.
Associate Professor, Department of Medicine, Room 2025, Etherington Hall, Queen's
University
Kingston, ON K7L 3N6, Canada
eMail: jamesp@queensu.ca
