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Fortschr Neurol Psychiatr 2020; 88(09): 567-572
DOI: 10.1055/a-1120-8567
Originalarbeit

Belastungen in der Betreuung von Parkinson-Patientinnen und - Patienten

Caregiver burden in patients with Parkinson’s disease
Gerhard Ransmayr
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Zusammenfassung

Patientinnen und Patienten (Pat.) mit Parkinson-Krankheit bedürfen mit zunehmender Krankheitsdauer und Schweregrad persönlicher Betreuung, die meist von weiblichen Angehörigen gewährleistet wird. Die Belastungen für pflegende Angehörige resultieren einerseits aus den motorischen Beeinträchtigungen der Pat., andererseits von neurokognitiven und neuropsychiatrischen Symptomen sowie Verhaltensstörungen, Störungen des autonomen Nervensystems, der Miktion, des Schlafes und der Selbstständigkeit. Gesundheitliche Probleme der Betreuungsperson, u. a. Depression und Angst, emotionale Probleme mit dem Pflegling, Beeinträchtigung des Schlafs, sowie Einschränkungen in persönlichen Anliegen, Beruf, Familie, Freizeitgestaltung, sozialen Aktivitäten, finanzielle Einbußen und mangelhafte soziale Unterstützung stellen weitere Belastungsfaktoren dar. Personen mit dem Risiko einer erheblichen Betreuungsbelastung sind frühzeitig zu identifizieren, um ihnen Informationen über die Krankheit und Unterstützungsmöglichkeiten sowie entsprechende personelle, psychologische und finanzielle Unterstützung zukommen zu lassen.

Abstract

Parkinson patients suffering from disease progression become increasingly dependent on personal care, which is mostly provided by female family members. Burden of care correlates with severity of motor impairment, neurocognitive and neuropsychiatric symptoms, behavioral abnormalities, autonomic nervous system disorders, impairment of micturition, sleep, and dependence. Caregiver burden also results from restrictions in time for personal matters, family, leisure and social activities, occupational limits, costs, lack of social support and impairment of sleep, depression, and emotional and other health problems of the carer (such as depression and anxiety). Caregivers at risk of caregiver burden need to be identified in time in order to provide information and adequate personal, psychological and financial support.

Schlüsselwörter

Betreuungsbelastung - Parkinson - motorische Symptome - neuropsychiatrische Symptome - progressive supranukleäre Parese

Key words

caregiver burden - motor symptoms - neuropsychiatric symptoms - progressive supranuclear palsy - Parkinson’s disease - Alzheimer’s disease


Publication History

Received: 16 January 2020

Accepted: 12 February 2020

Article published online:
05 July 2020

© Georg Thieme Verlag KG
Stuttgart · New York

 

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