Int J Sports Med 2000; 21(Suppl 2): 109-112
DOI: 10.1055/s-2000-8501
Georg Thieme Verlag Stuttgart ·New York

Quality of Life in Pediatric Heart, Heart-Lung, and Lung Transplant Recipients

P. A. Nixon,  K. A. Morris
  • 1 Department of Health + Exercise Science Wake Forest University, Winston-Salem, NC, USA,2 Children's Hospital of Pittsburgh, Pittsburgh, PA, USA
Further Information

Publication History

Publication Date:
31 December 2000 (online)

Few studies have assessed quality of life in pediatric heart and/or lung transplant recipients, and have varied by the tool used, the design employed, and the time of assessment from transplant. The results also varied including normal to abnormal (psychologic adjustment), diminishing problem behavior at home following transplantation, as well as improvements and no change in quality of life using tools designed specifically for the objective assessment of quality of life. This area of study is in its infancy and thus future studies should: 1) design and utilize standard tools (both global and disease-specific) that have documented validity and reliability in pediatric transplant recipients; 2) examine changes in quality of life longitudinally, and 3) identify predictors of quality of life and potential treatments that can help improve quality of life in pediatric transplant recipients.

References

  • 1 Abbott J, Webb K, Dodd M. Quality of life in cystic fibrosis.  J Royal Soc Med. 1997;  90 37-42
  • 2 Bibace R, Waish M. Developments of children's concept of illness.  Pediatrics. 1980;  66 912-917
  • 3 Breetvelt I S, van Dam F S. Underreporting by cancer patients: the case of response-shift.  Soc Sci Med. 1991;  32 981-987
  • 4 Fink R. Issues and problems in measuring children's health status in community health research.  Soc Sci Med. 1989;  29 715-719
  • 5 Guyatt G H, Walter S, Norman G. Measuring change over time: Assessing the usefulness of evaluative instruments.  J Chron Dis. 1987;  40 171-178
  • 6 Hunt S M, McEwen J. The development of a subjective health indicator.  Soc Health Illiness. 1983;  2 231-245
  • 7 Jenney M EM, Campbell S. Measuring quality of life.  Arch Dis Child. 1997;  77 347-354
  • 8 Juniper E F, Guyatt G H, Feeny D H . et al . Measuring quality of life in children with asthma.  Qual Life Res. 1996;  5 35-46
  • 9 Juniper E F, Guyatt G H, Feeny D H . et al . Minimum skills required by children to complete health-related quality of life instruments for asthma: comparison of measurement properties.  Eur Respir J. 1997;  10 2285-2294
  • 10 Kachaner J, Le Bidois J, Sidi D . et al .Quality of life of children having undergone heart transplantation. In: Walter PJ (ed) Quality of Life after Open Heart Surgery. The Netherlands; Kluwer Academic Publishers 1992: 371-379
  • 11 Kaplan R M, Atkins C F, Timms R M. Validity of a quality of well-being scale as an outcome measure in chronic obstructive pulmonary disease.  J Chron Dis. 1984;  37 85-95
  • 12 Lawrence K S, Fricker F J. Pediatric heart transplantation: Quality of Life.  J Heart Transplantation. 1987;  6 329-333
  • 13 Muldoon M F, Barger S D, Flory J D, Manuck S. What are quality of life measurements measuring?.  BMJ. 1998;  316 542-545
  • 14 Nixon P A, Orenstein D M, Rebovich P J . et al .Exercise tolerance and quality of life in pediatric lung transplant recipients. In: Armstrong N, Kirby BJ, Welsman JR (eds) Children and Exercise XIX: Promoting health and well-being. London; E & FN Spon 1997: 31-36
  • 15 Pantell R H, Lewis C C. Measuring the impact of medical care on children.  J Chron Dis. 1987;  40 99-108
  • 16 Patrick D L. Disease-specific versus general health state measures. In: Drummond MF (ed) Measuring the quality of life of people with visual impairment: Proceedings of a workshop. U.S. Department of Health and Human Services, National Institutes of Health publication. 90 - 3078: 37-49
  • 17 Scott J P, Dennis C, Mullins P. Heart-lung transplantation for end-stage respiratory disease in cystic fibrosis patients.  J Royal Soc Med. 1993;  86 19-22
  • 18 Whitehead B F, Rees P G, Sorensen K . et al . Results of heart-lung transplantation in children with cystic fibrosis.  Eur J Cardio-thorac Surg. 1995;  9 1-6
  • 19 Wray J, Radley-Smith R, Yacoub M. Effect of cardiac or heart-lung transplantation on the quality of life of the paediatric patient.  Qual Life Res. 1992;  1 41-46
  • 20 Yacoub M H, Gyi K, Khaghani A . et al . Analysis of 10-year experience with heart-lung transplantation for cystic fibrosis.  Transpl Proc. 1997;  29 632
  • 21 Yacoub M H, Banner N R, Khaghani A . et al . Heart-lung transplantation for cystic fibrosis and subsequent domino heart transplantation.  J Heart Transplant. 1990;  9 459-467

P. A. Nixon,PhD 

Health + Exercise Science Department Wake Forest University

Winston-Salem, NC 27109 USA

Phone: Phone:+1-336-758-4642

Fax: Fax:+1-336-758-4680

Email: E-mail:Nixonpa@wfv.edu