Epilepsy Care in Latin America and the Caribbean: Overcoming Challenges and Embracing Opportunities

Clio Rubinos; Daniel San-Juan; Carlos Alva-Diaz; Jorge Burneo; Andres Fernandez; Luis Carlos Mayor-Romero; Jorge Vidaurre; Loreto Rios-Pohl; Maria Jose Bruzzone

doi:10.1055/s-0044-1782616

Seminars in Neurology, Table of Contents

Semin Neurol 2024; 44(02): 130-146
DOI: 10.1055/s-0044-1782616

Review Article

Epilepsy Care in Latin America and the Caribbean: Overcoming Challenges and Embracing Opportunities

Clio Rubinos

¹Division of Critical Care Neurology and Division of Epilepsy, Department of Neurology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina

,

Daniel San-Juan

²Epilepsy Clinic, National Institute of Neurology and Neurosurgery Manuel Velasco Suárez, Epilepsy Service, Mexico City, Mexico

,

Carlos Alva-Diaz

³Grupo de Investigación Neurociencia, Efectividad Clínica y Salud Pública, Universidad Científica del Sur, Lima, Perú

⁴Servicio de Neurología, Departamento de Medicina y Oficina de Apoyo a la Docencia e Investigación, Hospital Daniel Alcides Carrión, Callao, Perú

,

Jorge Burneo

⁵Epilepsy Program and Neuroepidemiology Unit, Department of Clinical Neurological Sciences, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada

,

Andres Fernandez

⁶Department of Neurology, Thomas Jefferson University, Philadelphia, Pennsylvania

,

Luis Carlos Mayor-Romero

⁷Departmento de Neurologia, Fundación Santa Fe, Bogotá, Colombia

,

Jorge Vidaurre

⁸Division of Pediatric Neurology, Nationwide Children's Hospital, The Ohio State University, Columbus, Ohio

,

Loreto Rios-Pohl

⁹Clínica Integral de Epilepsia Infanto-juvenil, Santiago, Chile

,

Maria Jose Bruzzone

¹⁰Department of Neurology, University of Florida, Gainesville, Florida

› Author Affiliations

Abstract

The burden of epilepsy in the Latin America and the Caribbean (LAC) region causes a profound regional impact on the health care system and significantly contributes to the global epilepsy burden. As in many other resource-limited settings worldwide, health care professionals and patients with epilepsy in LAC countries face profound challenges due to a combination of factors, including high disease prevalence, stigmatization of epilepsy, disparities in access to care, limited resources, substantial treatment gaps, insufficient training opportunities for health care providers, and a diverse patient population with varying needs. This article presents an overview of the epidemiology of epilepsy and discusses the principal obstacles to epilepsy care and key contributors to the epilepsy diagnosis and treatment gap in the LAC region. We conclude by highlighting various initiatives across different LAC countries to improve epilepsy care in marginalized communities, listing strategies to mitigate treatment gaps and facilitate better health care access for patients with epilepsy by enhancing the epilepsy workforce.

Keywords

global - neurology - epilepsy - resource-limited settings - Latin America

Full Text

References

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