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Clin Colon Rectal Surg 2024; 37(03): 198-202
DOI: 10.1055/s-0043-1770733
Review Article

Hereditary Colorectal Cancer Syndromes Registry: What, How, and Why?

Mohammad Ali Abbass
1   Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, Illinois
,
Vitaliy Poylin
1   Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, Illinois
,
Scott Strong
1   Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, Illinois
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Abstract

Caring for patients with colorectal cancer inherited cancer syndromes is complex, and it requires a well-thought integration process between a multidisciplinary team, an accessible database, and a registry coordinator. This requires an aligned vision between the administrative business team and the clinical team.

Although we can manage most of the cancers that those patients develop according to oncologic guidance, the future risk of patients and their families might add emotional and psychological burdens on them in the absence of a well-qualified and trained team where balancing quality of life and cancer risk are at the essence of decision making.

Keywords

registry - coordinator - quality - cancer - hereditary


Publication History

Article published online:
31 July 2023

© 2023. Thieme. All rights reserved.

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