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Semin Speech Lang 2021; 42(03): 225-239
DOI: 10.1055/s-0041-1729947
Review Article

The Communicative Participation Item Bank: Evaluating, and Reevaluating, Its Use across Communication Disorders in Adults

Carolyn Baylor
1   Department of Rehabilitation Medicine, University of Washington, Seattle, Washington
,
Tanya Eadie
2   Department of Speech and Hearing Sciences, University of Washington, Seattle, Washington.
,
Kathryn Yorkston
1   Department of Rehabilitation Medicine, University of Washington, Seattle, Washington
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Funding The authors gratefully acknowledge funding that has supported past and ongoing work related to the CPIB including the National Center for Medical Rehabilitation Research (PI: K.Y.), the National Institute for Deafness and Other Communication Disorders (1R03DC010044, PI: C.B., and R01DC012510, PI: C.B.), the National Cancer Institute (1R03CA132525, PI: T.E., and 1R01CA177635, PI: T.E.), the American Speech-Language, Hearing Foundation (Clinical Research Grant, PI: C.B.), the Cure Dystonia Now Foundation and the National Spasmodic Dysphonia Association, and the University of Washington (Royalty Research Fund Grant, PI: C.B.). The authors thank Cait Brown, MS, CCC-SLP, for assistance with the preparation of this manuscript.
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Abstract

Patient-reported outcomes (PROs) are essential in patient-centered, evidence-based practice in speech-language pathology. PROs respect individuals who live with communication disorders as key stakeholders providing a critically unique perspective on consequences of communication disorders, and whether interventions bring about meaningful changes. Some PROs focus on specific communication symptoms such as voice or language symptom severity, while others focus on broader constructs such as quality of life. Many PROs target specific diagnostic groups. This article presents the Communicative Participation Item Bank (CPIB), a PRO that measures communicative participation restrictions. The CPIB was based on the concept of participation, or engagement in life situations, as defined in the World Health Organization's International Classification of Functioning, Disability, and Health. It was designed to be relevant for adults across different communication disorders to facilitate clinical and research activities that may involve either comparing or aggregating data across communication disorders. The CPIB follows current PRO development protocols including systematic guidance from stakeholders through cognitive interviews, and the measurement methods of Item Response Theory that allow precise and adaptive assessment. This article reviews use of the CPIB across different diagnostic groups, and identifies needs for future efforts to expand the relevance of the CPIB further.

Keywords

communicative participation - patient-reported outcomes - quality of life


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Artikel online veröffentlicht:
14. Juli 2021

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