CC BY-NC-ND 4.0 · J Neurosci Rural Pract 2021; 12(03): 518-523
DOI: 10.1055/s-0041-1727577
Original Article

Neurotrauma Registry Implementation in Colombia: A Qualitative Assessment

Erica D. Johnson
1  School of Medicine, University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania, United States
,
Sangki Oak
2  Department of General Surgery, Brigham and Women’s Hospital, Boston, Massachusetts, United States
,
3  Stanford Medical School, Stanford, California, United States
,
Sandra Olaya
4  Emergency Medicine Program, Javeriana University / Meditech Foundation, Cali, Colombia
,
Juan C. Puyana
5  Department of Surgery, University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania, United States
,
6  Neurosciences Institute, INUB-MEDITECH Research Group; Universidad EL Bosque, Bogotá, Colombia/Meditech Foundation/Valle Salud Clinic, Cali, Colombia
› Author Affiliations

Abstract

Objectives Latin America is among several regions of the world that lacks robust data on injuries due to neurotrauma. This research project sought to investigate a multi-institution brain injury registry in Colombia, South America, by conducting a qualitative study to identify factors affecting the creation and implementation of a multi-institution TBI registry in Colombia before the establishment of the current registry.

Methods Key informant interviews and participant observation identified barriers and facilitators to the creation of a TBI registry at three health care institutions in this upper-middle-income country in South America.

Results The study identified barriers to implementation involving incomplete clinical data, limited resources, lack of information and technology (IT) support, time constraints, and difficulties with ethical approval. These barriers mirrored similar results from other studies of registry implementation in low- and middle-income countries (LMICs). Ease of use and integration of data collection into the clinical workflow, local support for the registry, personal motivation, and the potential future uses of the registry to improve care and guide research were identified as facilitators to implementation. Stakeholders identified local champions and support from the administration at each institution as essential to the success of the project.

Conclusion Barriers for implementation of a neurotrauma registry in Colombia include incomplete clinical data, limited resources and lack of IT support. Some factors for improving the implementation process include local support, personal motivation and potential uses of the registry data to improve care locally. Information from this study may help to guide future efforts to establish neurotrauma registries in Latin America and in LMICs.



Publication History

Publication Date:
16 June 2021 (online)

© 2021. Association for Helping Neurosurgical Sick People. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial-License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/).

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