Polycystic Ovary Syndrome Models of Care: A Review and Qualitative Evaluation of a Guideline-Recommended Integrated Care

Abstract

Polycystic ovary syndrome (PCOS) is a heterogeneous disorder and many women are dissatisfied with their healthcare under the current fragmented health services. Here, we review existing literature on PCOS healthcare services and qualitatively evaluate an integrated PCOS service based on experiences of women with PCOS. Limited prior PCOS-dedicated services have been studied and their quantitative and efficacy-focused evaluations are summarized. Here, we also provide a broader PCOS service evaluation via semistructured interviews and surveys, with thematic analysis based on a predetermined evaluation framework. Fifteen women completed interviews and surveys. Overall the integrated, evidence-based PCOS service was well-received and women were generally satisfied with appropriateness, effectiveness, and reported positive health impact resulting from the service. Integrated care, tailored treatments, education, lifestyle support, and laser therapy were highly valued. Patients reported improvements on symptoms, understanding and confidence in managing PCOS, and emotional well-being. Elements of efficiency in the initial stages, awareness and communication, and the need for service expansion and tensions between evidence-based treatments and patient preferences were also captured to guide improvement. Further research into models of care is recommended to meet the needs of women with PCOS.

Keywords

polycystic ovary syndrome - healthcare service - evaluation - model of care - qualitative study

Authors' Contribution

C.T.T., S.P., A.E.J., L.J.M., S.S.L., T.R., and H.S. were involved in the conception or design of the work. C.T.T. and S.P. were involved in the acquisition and analysis of data. C.T.T, S.P., S.S.L., H.S., and H.J.T. were involved in the interpretation of the data. C.T.T. was involved in drafting the manuscript. C.T.T, S.P., H.J.T., A.E.J., L.J.M., S.S.L., T.R., and H.S. were involved in critical revision and approval of the final version of the manuscript.

Data Availability Statement

The data underlying this article will be shared on reasonable request to the corresponding author.

Publication History

Article published online:
29 June 2021

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