CC BY-NC-ND 4.0 · International Journal of Epilepsy 2020; 6(02): 50-53
DOI: 10.1055/s-0040-1715767
Original Article

Education, Marriage, and Employment in People with Epilepsy: The Barriers that Patients Perceive

Ali A. Asadi-Pooya
1   Epilepsy Research Center, Shiraz University of Medical Sciences, Shiraz, Iran
2   Department of Neurology, Jefferson Comprehensive Epilepsy Center, Thomas Jefferson University, Philadelphia, Pennsylvania, United States
,
Maryam Homayoun
1   Epilepsy Research Center, Shiraz University of Medical Sciences, Shiraz, Iran
,
Shahla Keshavarz
1   Epilepsy Research Center, Shiraz University of Medical Sciences, Shiraz, Iran
› Author Affiliations

Abstract

Objectives We surveyed people with epilepsy (PWE) and uncontrolled seizures on the challenges which they have had in their lives with respect to educational achievement, employment, and marriage. We tried to scrutinize their reasons and perceptions for their social underachievement and difficulties.

Materials and Methods Adult patients above 25 years of age, with epileptic seizures for more than 5 years, who were investigated at Shiraz Comprehensive Epilepsy Center, from January until March 2019, were studied. We prepared a questionnaire for our study and asked whether they have any college education? If they have ever married? And, if they are employed?

Results Seventy patients enrolled in our study. Age of the patients was 33 ± 6 years (range: 26–59 years) and their age at onset of epilepsy was 14 ± 9 years (range: 0–35 years). Forty-four patients (63%) never received any college education; 30 patients (43%) were single; and finally, 37 patients (53%) were unemployed. The most common reasons perceived by the patients for these life challenges were functional disability (e.g., inability to study or to work), social discrimination and stigmatization, and uncontrolled seizures and the associated consequences (i.e., fear of having seizures).

Conclusion Many PWE (both men and women) and uncontrolled seizures suffer from social underachievement and challenges in their daily lives. Various strategies may help PWE to overcome these challenges.



Publication History

Article published online:
20 August 2020

© 2020. Indian Epilepsy Society. This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial-License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/).

Thieme Medical and Scientific Publishers Pvt. Ltd.
A-12, 2nd Floor, Sector 2, Noida-201301 UP, India

 
  • References

  • 1 Goodall J, Salem S, Walker RW. et al. Stigma and functional disability in relation to marriage and employment in young people with epilepsy in rural Tanzania. Seizure 2018; 54: 27-32
  • 2 Komolafe MA, Sunmonu TA, Afolabi OT. et al. The social and economic impacts of epilepsy on women in Nigeria. Epilepsy Behav 2012; 24 (01) 97-101
  • 3 Birbeck G, Chomba E, Atadzhanov M, Mbewe E, Haworth A. The social and economic impact of epilepsy in Zambia: a cross-sectional study. Lancet Neurol 2007; 6 (01) 39-44
  • 4 Wo MC, Lim KS, Choo WY, Tan CT. Employability in people with epilepsy: a systematic review. Epilepsy Res 2015; 116: 67-78
  • 5 Puka K, Tavares TP, Speechley KN. Social outcomes for adults with a history of childhood-onset epilepsy: a systematic review and meta-analysis. Epilepsy Behav 2019; 92: 297-305
  • 6 Average marriage age in Iran increased by 3 years. Available at: https://www.tehrantimes.com/news/424338/Average-marriage-age-in-Iran-increased-by-3-years/. Accessed on December 3, 2019
  • 7 Quereshi C, Standing HC, Swai A, Hunter E, Walker R, Owens S. Barriers to access to education for young people with epilepsy in Northern Tanzania: a qualitative interview and focus group study involving teachers, parents and young people with epilepsy. Epilepsy Behav 2017; 72: 145-149
  • 8 Ever married men and women, Singulate Mean Age at Marriage (SMAM). Available at: http://data.un.org/DocumentData.aspx?id=321/. Accessed May 12, 2020
  • 9 Mean age at first marriage, singulate mean age at marriage and percentage ever married by age group. Available at: https://www.un.org/en/development/desa/population/publications/dataset/fertility/wfr2012/Metadata/Metadata_MAFM-SMAM-EVER-MARRIED.pdf/. Accessed May 12, 2020
  • 10 Kinariwalla N, Sen A. The psychosocial impact of epilepsy on marriage: a narrative review. Epilepsy Behav 2016; 63: 34-41
  • 11 Ghanean H, Nojomi M, Jacobsson L. Public awareness and attitudes towards epilepsy in Tehran, Iran. Glob Health Action 2013; 6: 21618
  • 12 Andersson K, Ozanne A, Edelvik Tranberg A. et al. Socioeconomic outcome and access to care in adults with epilepsy in Sweden: a nationwide cohort study. Seizure 2020; 74: 71-76
  • 13 Wo MC, Lim KS, Choo WY, Tan CT. Factors affecting the employability in people with epilepsy. Epilepsy Res 2016; 128: 6-11
  • 14 Sung C, Muller V, Jones JE, Chan F. Vocational rehabilitation service patterns and employment outcomes of people with epilepsy. Epilepsy Res 2014; 108 (08) 1469-1479
  • 15 Auvin S, Wirrell E, Donald KA. et al. Systematic review of the screening, diagnosis, and management of ADHD in children with epilepsy. Consensus paper of the Task Force on Comorbidities of the ILAE Pediatric Commission. Epilepsia 2018; 59 (10) 1867-1880
  • 16 Wo SW, Ong LC, Low WY, Lai PSM. The impact of epilepsy on academic achievement in children with normal intelligence and without major comorbidities: a systematic review. Epilepsy Res 2017; 136: 35-45
  • 17 Iran: Unemployment rate from 1999 to 2020. Available at: https://www.statista.com/statistics/294305/iran-unemployment-rate/. Accessed May 15, 2020
  • 18 Chin PS, Berg AT, Spencer SS. et al. Employment outcomes following resective epilepsy surgery. Epilepsia 2007; 48 (12) 2253-2257