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CC BY-NC-ND 4.0 · Journal of Health and Allied Sciences NU 2013; 03(03): 087-092
DOI: 10.1055/s-0040-1703685
Case Report

LIVED EXPERIENCES OF MOTHERS OF CHILDREN WITH DOWN'S SYNDROME IN SELECTED SCHOOLS AT MANGALORE

Reeja Mol R.
1   M.Sc. (N) Student, Department of Child Health Nursing, Nitte Usha Institute of Nursing Sciences, Nitte University, Kotekar Beeri Road, Paneer, Deralakatte, Mangalore - 575 018, Karnataka, India
,
Sujatha R.
2   Professor & HOD, Department of Child Health Nursing, Nitte Usha Institute of Nursing Sciences, Nitte University, Kotekar Beeri Road, Paneer, Deralakatte, Mangalore - 575 018, Karnataka, India
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Abstract

This qualitative study explored the mother's experiences of parenting a child with Down's syndrome. The research approach used in this study was Phenomenology. Interviews were conducted with seven mothers who had a child with Down syndrome. The study was conducted at selected special schools at Mangalore. From the Analysis of the data six major themes were emerged. Non acceptance – Birth of an abnormal child, Lifestyle changes, High bonding between family members, Worried about the unpredictable future of the child, Societal and Community acceptance and Positiveness towards life. These findings show that birth of a child with Down syndrome produces tremendous physical and psychological effect in parents. So parents need adequate support from nurses right from the very birth of a disabled child. Therefore this study is important for nurses working with families having children with Down syndrome. They need to realize and aware of the problems faced by the families and should advocate necessary support.

Keywords

Phenomenology - lived experiences - Down's syndrome


Publication History

Article published online:
26 April 2020

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  • References

  • 1 Polit DF, Beck CT. Nursing Research: Principles and Methods. 7th edition. Philadelphia: Williams and Wilkims; 2004
  • 2 MaCnee C, McCabe S. Understanding Nursing Research. 2nd ed. Philadelphia: Lippincott Williams and Wilkins; 2008.
  • 3 Davies, D., & Dodd, J. Qualitative research and the question of rigor. Qualitative Health research, Vol 12(2), 2002. P 279-289
  • 4 Eisner, E. W. The enlightened eye: Qualitative inquiry and the enhancement of educational practice. New York, NY: Macmillan Publishing Company; 1991
  • 5 Helen j. Streubert Speziale, Dona Rinaldi Carpenter, 'Qualitative Research In Nursing' 4th edition, Lippincott Williams and Wilkins publishers, Philadelphia.
  • 6 Stenbacka, C. Qualitative research requires quality concepts of its own. Management Decision, 39(7), 2001. P 551-555
  • 7 John L. Sanders & Sam B. Morgan(2008) Family Stress and Adjustment as Perceived by Parents of Children with Autism or Down syndrome. Child Family Behavior Therapy (2001) Volume: 23, Issue: 4, Publisher: Taylor & Francis Group, Pages:1-20 available from http://www.mendeley.com/catalog/child-family-behavior-therapy-family-stressadjustment-perceived-parents-children-autism-down-syndro/
  • 8 Evelyn M. Flaherty & Laraine Masters Glidden(2007) of Positive Adjustment in Parents Rearing Children with Down syndrome. Early Education & Development, Volume11, Issue 4, 2000. Available from http://www.tandfonline.com/doi/abs/10.