Smile Train: The ascendancy of cleft care in India

ABSTRACT

Though India has an estimated population of one million untreated cleft patients, facilities for its treatment have been limited and are not evenly distributed across the country. Furthermore, a paucity of committed cleft surgeons in fewer hospitals to provide quality surgical treatment to these patients, poverty, illiteracy, superstitions and poor connectivity in some remote regions severely limit the chances of an average cleft lip patient born in India from receiving rational and effective comprehensive treatment for his/her malady. The Smile Train Project with its singular focus on cleft patients started its philanthropic activities in India in the year 2000. It made hospitals and included clefts surgeon equal partners in this programme and helped them treat as many cleft patients as they possibly could. The Project encouraged improvement of the training and infrastructure in various centres across the length and breadth of the region. The Project received an unprecedented success in terms of growth of number of centres, cleft surgeons and quantum of cleft patients reporting for treatment. The G S Memorial Hospital is one such partner hospital. It started innovative outreach programmes and took a holistic view of the needs of these patients and their families. With the support of the Smile Train, it has not only succeeded in providing treatment to more than 14,500 patients in 5 years, but has also devised innovative outreach programmes and seamlessly incorporated salient changes in the hospital system to suit the needs of the target population.

KEY WORDS

Cleft lip - Cleft Palate - Out-reach programmes - Smile Pinki - Smile Train

• REFERENCES

• 1 Ali A, Singh SK, Raman R. MTHFR 677TT alone and IRF6 820GG together with MTHFR 677CT, but not MTHFR A1298C, are risks for nonsyndromic cleft lip with or without cleft palate in an Indian population. Genet Test Mol Biomarkers 2009;13:355-60.
• 2 Ali A, Singh SK, Raman R. Coding Region of IRF6 Gene may not be Causal for Van der Woude syndrome in Cases from India. The Cleft Palate Craniofacial Journal (doi: 10.1597/08-202) (in press).
• 3 Ali A, Singh SK, Raman R. Plasma Homocysteine Concentration and MTHFRC677T and A1298C mutations in the etiology of Nonsyndromic Cleft Lip with or Without Cleft Palate. 34th Annual Conference of the Indian Society of Human Genetics, 2009. p. 124.
• 4 Ali A, Singh SK, Raman R. Analysis of IRF6 gene in Van der Woude syndrome from an Indian population. 58th Annual Meeting of American Society of Human Genetics, 2008. p. 431.
• 5 Ali A, Singh SK, Raman R. Novel variants IVS1+3900 A>G, IVS6+27 C>G and 263 T>C in non-coding regions of Interferon Regulatory Factor 6 gene in Van der Woude syndrome patients from Indian population. XXXI All India Cell Biology Conference and Symposium on “Stem Cells: Application and Prospects”, Dec 14-16, 2007, BHU, Varanasi.