FV 840. Communication Possibilities for Girls with Rett’s Syndrome

Background: Rett’s syndrome is a profound developmental disorder. Typical is loss of speech and function of the hands. Communication with the girls is therefore difficult. There are descriptions of attempts to communicate by way of gesturing or getting in eye contact. Because of the lack of function of the hands, communication using eye contact seems more successful.

Objective: The aim of this study was to try out different ways of communication to enable interaction. Furthermore, should be found out if this helps in terms of integration and quality of life.

Problem formulation: Is there a possibility for girls with Rett’s syndrome to use modern communication devices with EyeControl to communicate and helps this to integrate them in groups, especially in kindergarten and school.

Methods: In 6 girls with Rett’s syndrome, we tried out an EyeControl communication device. Some girls had these devices already, and others started using them during the stay and got a description afterward. Sometimes we started using cards with pictures before using electronic devices. In groups, communication with other children was initiated.

Results: Using EyeControl systems, even difficult electronic devices for communication can be used by girls with Rett’s syndrome. There is sometimes a little gap before they can trigger it. Therefore, a specialized knowledge is afforded to help these girls to communicate especially in group situations. Videos can show how it is possible to play and to act more self-determined.

Conclusion: Electronic devices with EyeControl enable girls with Rett’s syndrome to take part in group activities. Parents report an increase in quality of life.