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Open Access
CC BY-NC-ND 4.0 · Int Arch Otorhinolaryngol 2018; 22(04): 415-427
DOI: 10.1055/s-0038-1642607
Original Research
Thieme Revinter Publicações Ltda Rio de Janeiro, Brazil

Benefit of Cochlear Implantation in Children with Multiple-handicaps: Parent's Perspective

Heloisa Romeiro Nasralla
1   Cochlear Implant Group, Hospital das Clinicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, BR
,
Adilson Marcos Montefusco
2   Department of Otorhinolaryngology, Faculdade de Medicina FMUSP, Universidade de São Paulo, São Paulo, SP, BR
,
Ana Cristina H. Hoshino
1   Cochlear Implant Group, Hospital das Clinicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, BR
,
Paola Angelica Samuel
2   Department of Otorhinolaryngology, Faculdade de Medicina FMUSP, Universidade de São Paulo, São Paulo, SP, BR
,
Ana Tereza de Matos Magalhães
1   Cochlear Implant Group, Hospital das Clinicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, BR
,
Maria Valéria Schmidt Goffi-Gomez
2   Department of Otorhinolaryngology, Faculdade de Medicina FMUSP, Universidade de São Paulo, São Paulo, SP, BR
,
Robinson Koji Tsuji
2   Department of Otorhinolaryngology, Faculdade de Medicina FMUSP, Universidade de São Paulo, São Paulo, SP, BR
,
Ricardo Ferreira Bento
2   Department of Otorhinolaryngology, Faculdade de Medicina FMUSP, Universidade de São Paulo, São Paulo, SP, BR
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Publikationsverlauf

03. Juli 2017

21. Januar 2018

Publikationsdatum:
26. April 2018 (online)

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Abstract

Introduction The cochlear implants centers in the world are studying the cochlear implantation in children with multiple handicaps.

Objective To develop a questionnaire to analyze the subjective benefits of the cochlear implantation in multiple handicapped children according to their parent's perspective.

Methods A questionnaire was applied to 14 families of multiple handicapped children, aging from 2–12 years old and having from 11 months to 11 years of implant use.

Results The social-emotional abilities were improved because of many factors, such as: auditory exposure, which happened in 84% of the children; recognition of their own names, which increased in 56%; and development of eye contact, in 28% of the subjects. Other benefits appeared to be: music appreciation and more attention and adherence to other therapies and school activities. Besides, some children became interested in objects, playing with other children, and more adapted to daily routines. Thirty-five percent of the children acquired oral language, mainly the bilaterally implanted, while 14% of them were engaged in sign language. Although all of the children showed a significant improvement in communication, the emotional issues of some families and the severity of the handicaps negatively impacted the outcomes. In spite of the families' acknowledgement of some benefits, the diagnosis of autism spectrum disorder caused frustration, requiring a readjustment of the expectations.

Conclusion The questionnaire turned out to be an adequate tool to reveal the social-emotional benefits of cochlear implantation. Although oral language was not the major outcome in these cases, the cochlear implant benefits involved the whole family. All of the families recommended the implant to other children in a similar situation.

Keywords

deafness - multiple handicaps - cochlear implants - quality of life

Supplementary Material