CC BY-NC-ND 4.0 · Yearb Med Inform 2018; 27(01): 156-162
DOI: 10.1055/s-0038-1641202
Section 7: Consumer Health Informatics and Education
Working Group Contribution
Georg Thieme Verlag KG Stuttgart

Benefit-risk of Patients' Online Access to their Medical Records: Consensus Exercise of an International Expert Group

Primary Health Care Informatics Working Group Contribution to the Yearbook of Medical Informatics 2018
Harshana Liyanage
1   Department of Clinical & Experimental Medicine, University of Surrey, GUILDFORD, Surrey, UK
Siaw-Teng Liaw
2   School of Public Health & Community Medicine, UNSW Medicine Australia, Ingham Institute of Applied Medical Research, NSW, Australia
Emmanouela Konstantara
1   Department of Clinical & Experimental Medicine, University of Surrey, GUILDFORD, Surrey, UK
Freda Mold
3   Department of Health and Medical Sciences, University of Surrey, GUILDFORD, Surrey GU2 7TE, UK
Richard Schreiber
4   Geisinger Holy Spirit, Camp Hill, PA, USA
Craig Kuziemsky
5   Telfer School of Management, University of Ottawa, Ottawa, Ontario, Canada, K1N 6N5
Amanda L. Terry
6   Centre for Studies in Family Medicine, Department of Family Medicine, Interfaculty Program in Public Health, Department of Epidemiology & Biostatistics, Schulich School of Medicine & Dentistry, Western University, London, ON, Canada
Simon de Lusignan
1   Department of Clinical & Experimental Medicine, University of Surrey, GUILDFORD, Surrey, UK
› Author Affiliations
Further Information

Publication History

Publication Date:
22 April 2018 (online)


Background: Patients' access to their computerised medical records (CMRs) is a legal right in many countries. However, little is reported about the benefit-risk associated with patients' online access to their CMRs.

Objective: To conduct a consensus exercise to assess the impact of patients' online access to their CMRs on the quality of care as defined in six domains by the Institute of Medicine (IoM), now the National Academy of Medicine (NAM).

Method: A five-round Delphi study was conducted. Round One explored experts' (n = 37) viewpoints on providing patients with access to their CMRs. Round Two rated the appropriateness of statements arising from Round One (n = 16). The third round was an online panel discussion of findings (n = 13) with the members of both the International Medical Informatics Association and the European Federation of Medical Informatics Primary Health Care Informatics Working Groups. Two additional rounds, a survey of the revised consensus statements and an online workshop, were carried out to further refine consensus statements.

Results: Thirty-seven responses from Round One were used as a basis to initially develop 15 statements which were categorised using IoM's domains of care quality. The experts agreed that providing patients online access to their CMRs for bookings, results, and prescriptions increased efficiency and improved the quality of medical records. Experts also anticipated that patients would proactively use their online access to share data with different health care providers, including emergencies. However, experts differed on whether access to limited or summary data was more useful to patients than accessing their complete records. They thought online access would change recording practice, but they were unclear about the benefit-risk of high and onerous levels of security. The 5-round process, finally, produced 16 consensus statements.

Conclusion: Patients' online access to their CMRs should be part of all CMR systems. It improves the process of health care, but further evidence is required about outcomes. Online access improves efficiency of bookings and other services. However, there is scope to improve many of the processes of care it purports to support, particularly the provision of a more effective interface and the protection of the vulnerable.