CC BY-NC-ND 4.0 · Yearb Med Inform 2018; 27(01): 048-054
DOI: 10.1055/s-0038-1641195
Special Section: Between Access and Privacy: Challenges in Sharing Health Data
Working Group Contributions
Georg Thieme Verlag KG Stuttgart

Balancing Health Information Exchange and Privacy Governance from a Patient-Centred Connected Health and Telehealth Perspective

A Contribution from the IMIA Organizational and Social Issues and Telehealth Working Groups
Craig E. Kuziemsky
1  Telfer School of Management, University of Ottawa, Ottawa, Ontario, Canada
Shashi B. Gogia
2  Society for Administration of Telemedicine and Healthcare Informatics, New Delhi, India
Mowafa Househ
3  College of Public Health and Health Informatics, King Saud Bin Abdul Aziz University for Health Sciences, King Abdullah International Medical Research Center, Riyadh, Saudi Arabia
Carolyn Petersen
4  Senior editor at Mayo Clinic, Rochester, Minnesota, United States
Arindam Basu
5  University of Canterbury School of Health Sciences, Christchurch, New Zealand
› Author Affiliations
Further Information

Publication History

Publication Date:
22 April 2018 (eFirst)



Objectives: Connected healthcare is an essential part of patient-centred care delivery. Technology such as telehealth is a critical part of connected healthcare. However, exchanging health information brings the risk of privacy issues. To better manage privacy risks we first need to understand the different patterns of patient-centred care in order to tailor solutions to address privacy risks.

Methods: Drawing upon published literature, we develop a business model to enable patient-centred care via telehealth. The model identifies three patient-centred connected health patterns. We then use the patterns to analyse potential privacy risks and possible solutions from different types of telehealth delivery.

Results: Connected healthcare raises the risk of unwarranted access to health data and related invasion of privacy. However, the risk and extent of privacy issues differ according to the pattern of patient-centred care delivery and the type of particular challenge as they enable the highest degree of connectivity and thus the greatest potential for privacy breaches.

Conclusion: Privacy issues are a major concern in telehealth systems and patients, providers, and administrators need to be aware of these privacy issues and have guidance on how to manage them. This paper integrates patient-centred connected health care, telehealth, and privacy risks to provide an understanding of how risks vary across different patterns of patient-centred connected health and different types of telehealth delivery.