Adolescents with Hearing Loss and the International Classification of Functioning, Disability, and Health: Children & Youth Version

Kris English; Emily Pajevic

doi:10.1055/s-0036-1584407

Seminars in Hearing, Table of Contents

Semin Hear 2016; 37(03): 247-256
DOI: 10.1055/s-0036-1584407

Review Article

Thieme Medical Publishers 333 Seventh Avenue, New York, NY 10001, USA.

Adolescents with Hearing Loss and the International Classification of Functioning, Disability, and Health: Children & Youth Version

Kris English

¹The University of Akron, School of Speech Pathology and Audiology, Akron, Ohio

,

Emily Pajevic

²Modern Hearing Solutions, Canton, Ohio

› Author Affiliations

Abstract

In 2007, the World Health Organization published a set of International Classification of Functioning, Disability and Health (ICF) codes designed for children and youth (ICF-CY version). The ICF-CY considers typical developmental changes associated with childhood while describing health status and the effects of intervention. In this article we will describe how a specific intervention (transition planning for adolescents) can be documented with the ICF-CY. Transition planning in health care prepares adolescents and their families for the transfer from pediatric to adult health services and has been demonstrated to be an effective practice for adolescents with many types of chronic health conditions (e.g., cystic fibrosis, epilepsy, diabetes). Audiology has not yet addressed transition planning for adolescents with hearing loss; therefore, we propose using the ICF-CY to design a pathway of care. The ICF-CY can standardize transition planning to the benefit of both teen patients and audiologists: teens and their families would gradually acquire necessary knowledge and skills, and audiologists would develop a meaningful data set to help further inform our pediatric practices, as well as give more structure, depth, and accountability to our role in rehabilitation.

Keywords

Transition - health literacy

Full Text

References

References
1 World Health Organization. International Classification of Function, Disability and Health. Geneva, Switzerland: World Health Organization; 2001
2 World Health Organization. International Classification of Functioning, Disability and Health: Children & Youth Version: ICF-CY. Geneva, Switzerland: World Health Organization; 2007
3 Cramm H, Aiken AB, Stewart D. Perspectives on the International Classification of Functioning, Disability, and Health: Child and Youth version (ICF-CY) and occupational therapy practice. Phys Occup Ther Pediatr 2012; 32 (4) 388-403
4 Anmyr L, Olsson M, Larson K, Freijd A. Children with hearing impairment—living with cochlear implants or hearing aids. Int J Pediatr Otorhinolaryngol 2011; 75 (6) 844-849
5 Bickenbach JE. Disability, culture and the U.N. convention. Disabil Rehabil 2009; 31 (14) 1111-1124
6 Griffo G, Leonardi M, Martinuzzi A , et al. Moving towards ICF use for monitoring the UN Convention on the rights of persons with disabilities: the Italian experience. Disabil Rehabil 2009; 31 (Suppl. 01) S74-S77
7 Hollenweger J, Moretti M. Using the International Classification of Functioning, Disability and Health Child and Youth Version in education systems: a new approach to eligibility. Am J Phys Med Rehabil 2011; 92 (2, Suppl): S97-S102
8 Adolfsson M, Malmqvist J, Pless M, Granuld M. Identifying child functioning from an ICF-CY perspective: everyday life situations explored in measures of participation. Disabil Rehabil 2011; 33 (13–14) 1230-1244
9 Mandrusiak A, MacDonald J, Watter P. The International Classification of Functioning, Disability and Health: an effective model for describing young people with cystic fibrosis. Child Care Health Dev 2009; 35 (1) 2-4
10 Kostanjsek N. Use of The International Classification of Functioning, Disability and Health (ICF) as a conceptual framework and common language for disability statistics and health information systems. BMC Public Health 2011; 11 (Suppl. 04) S3
11 Martinuzzi A, Salghetti A, Betto S , et al. The International Classification of Functioning Disability and Health, version for children and youth as a roadmap for projecting and programming rehabilitation in a neuropaediatric hospital unit. J Rehabil Med 2010; 42 (1) 49-55
12 Trabacca A, Russo L, Losito L , et al. The ICF-CY perspective on the neurorehabilitation of cerebral palsy: a single case study. J Child Neurol 2012; 27 (2) 183-190
13 Simeonsson RJ, Björck-Åkessön E, Lollar DJ. Communication, disability, and the ICF-CY. Augment Altern Commun 2012; 28 (1) 3-10
14 Manganello JA. Health literacy and adolescents: a framework and agenda for future research. Health Educ Res 2008; 23 (5) 840-847
15 National Alliance to Advance Adolescent Health. Got TRANSITION? Six core elements of health care transition 2.0. Transitioning youth to an adult health care provider. 2014. Available at: http://www.gottransition.org/resourcesGet.cfm?id=206 . Accessed July 27, 2015
16 Institute of Medicine. Health Literacy: A Prescription to End Confusion. Washington DC: National Academies Press; 2004
17 Nutbeam D. The evolving concept of health literacy. Soc Sci Med 2008; 67 (12) 2072-2078
18 Zarcadoolas C, Pleasant A, Greer DS. Understanding health literacy: an expanded model. Health Promot Int 2005; 20 (2) 195-203
19 Berkman ND, Davis TC, McCormack L. Health literacy: what is it?. J Health Commun 2010; 15 (2) (Suppl. 02) 9-19
20 Ishikawa H, Yano E. Patient health literacy and participation in the health-care process. Health Expect 2008; 11 (2) 113-122
21 Gray NJ, Klein JD, Noyce PR, Sesselberg TS, Cantrill JA. The Internet: a window on adolescent health literacy. J Adolesc Health 2005; 37 (3) 243
22 National Assessment of Adult Literacy. The health literacy of America's adults: results from the 2003 national assessment of adult literacy. Washington, DC: U.S. Department of Education National Center for Educational Statistics; 2006. . Available at: https://nces.ed.gov/pubs2006/2006483.pdf . Accessed May 31, 2016
23 Weiss B. Health Literacy and Patients Safety: Help patients Understand. Manual for Clinicians, 2nd ed. Chicago, IL: American Medical Association; 2007
24 Brown SL, Teufel JA, Birch DA. Early adolescents perceptions of health and health literacy. J Sch Health 2007; 77 (1) 7-15
25 Manganello JA, Shone L. Health literacy. ACT center for youth center of excellence. 2013 . Available at: http://www.actforyouth.net/resources/rf/rf_health-literacy_0513.pdf . Accessed May 31, 2016
26 Yin HS, Forbis SG, Dreyer BP. Health literacy and pediatric health. Curr Probl Pediatr Adolesc Health Care 2007; 37 (7) 258-286
27 Davis TC, Wolf MS, Arnold CL , et al. Development and validation of the Rapid Estimate of Adolescent Literacy in Medicine (REALM-Teen): a tool to screen adolescents for below-grade reading in health care settings. Pediatrics 2006; 118 (6) e1707-e1714
28 US Department of Education. The Nation's Report Card. Washington, DC: US Department of Education; 2014. . Available at: http://www.nationsreportcard.gov . Accessed July 27, 2015
29 Darrah J. Using the ICF as a framework for clinical decision making in pediatric physical therapy. Adv Physiother 2008; 10: 146-151
30 Nasr SZ, Campbell C, Howatt W. Transition program from pediatric to adult care for cystic fibrosis patients. J Adolesc Health 1992; 13 (8) 682-685
31 Smith GM, Lewis VR, Whitworth E, Gold DT, Thornburg CD. Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease. J Pediatr Hematol Oncol 2011; 33 (5) 379-382
32 Cadario F, Prodam F, Bellone S , et al. Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach. Clin Endocrinol (Oxf) 2009; 71 (3) 346-350
33 Nakhla M, Daneman D, To T, Paradis G, Guttmann A. Transition to adult care for youths with diabetes mellitus: findings from a Universal Health Care System. Pediatrics 2009; 124 (6) e1134-e1141
34 McDonagh JE, Southwood TR, Shaw KL ; British Society of Paediatric and Adolescent Rheumatology. The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 2007; 46 (1) 161-168
35 Geerlings RP, Aldenkamp AP, de With PH, Zinger S, Gottmer-Welschen LM, de Louw AJ. Transition to adult medical care for adolescents with epilepsy. Epilepsy Behav 2015; 44: 127-135
36 GotTransition.org. Six core elements of health care transition. n.d. Available at: http://www.gottransition.org/resourceGet.cfm?id=206 . Accessed July 27, 2015
37 Pajevic E, English K. Teens as health care consumers: planned transition and empowerment. Audiol Today 2014; 26 (6) 14-18
38 Royal College of Nursing. Adolescent transition care: guidance for nursing staff. London, UK: Royal College of Nursing. . 2004. Available at: https://www2.rcn.org.uk/_data/assets/pdf_file/0011/78617/004510.pdf . Accessed May 31, 2016
39 van Staa A, Jedeloo S, van der Stege H ; On Your Own Feet Research Group. “What we want”: chronically ill adolescents' preferences and priorities for improving health care. Patient Prefer Adherence 2011; 5: 291-305
40 Cooley WC, Sagerman PJ ; American Academy of Pediatrics; American Academy of Family Physicians; American College of Physicians; Transitions Clinical Report Authoring Group. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011; 128 (1) 182-200
41 Crowley R, Wolfe I, Lock K, McKee M. Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 2011; 96 (6) 548-553
42 Carey H, Long T. The pediatric physical therapist's role in promoting and measuring participation in children with disabilities. Pediatr Phys Ther 2012; 24 (2) 163-170
43 Educational Audiology Association. Knowledge is power: a program to help students learn about their hearing loss. 2009. Available at: http:www.edaud.org . Accessed May 31, 2016.
44 Phonak. Guide to Access Planning. n.d. Available at: http://www.phonakpro.com/us/b2b/en/pediatric/GAP/teens_youngadults.html . Accessed July 27, 2015
45 National Institute for Health Care Management. The Case for Investing in Youth Health Literacy: One Step on the Path to Achieving Health Equity for Adolescents. Washington, DC: National Institute for Health Care Management; ; 2011. Available at: http://www.nihcm.org/images/stories/NIHCM-YouthLiteracy-FINAL_WEB.pdf . Accessed August 1, 2015
46 Coleman C. Teaching health care professionals about health literacy: a review of the literature. Nurs Outlook 2011; 59 (2) 70-78
47 Neria C. Where are the voices of adolescents? An examination of adolescent cochlear implant users' socio-emotional development. Perspect Sch-Based Issues 2009; 10: 123-126
48 Ellingsen KM. Deriving Developmental Code Sets from the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) [dissertation]. Chapel Hill, NC: University of North Carolina Chapel Hill; 2011
49 Philipsen HH. Rite of passage: an alternative approach to rehabilitation. Aud Today 2015; 27 (2) 30-35