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Broad, coordinated access to biomaterials is essential for the translation of research findings into patient therapies. A centrally-organized DZL Biobanking Platform will guarantee that member of the DZL as well as external partners will have easy and direct access to biomaterials from patients with pulmonary disease. The DZL Biobanking Platform will capitalize on existing biobanking structures within DZL sites and will be connected to the Technology and Methods Platform for Network Research in Medicine (TMF e.V.) and Biobanking and Biomolecular Resources Research Infrastructure (BBMRI) catalogues. The biomaterial banks of DZL sites are not homogeneous. They are varying regarding structure and organizational standards methods of biomaterial collection, sample, data and quality management.
In addition to implementing the DZL Biobanking portal in order to provide an overview of existing collections and biomaterials, the DZL Biobanking initiative aims to harmonize operating procedures and policies across DZL sites. These harmonization efforts include standardization of informed consent procedures standardization of sample procurement, processing, and handling, as well as the development of harmonized of phenotyping tools and sample management. Member of the platform compiled a forward-looking broad informed consent form allowing for collection, unlimited storage, and unrestricted use of biomaterials and phenotyping data. For a prospective collection of biomaterials and phenotyping data an overarching data management structure was considered including a centralized patient registration and pseudonymization service and a data warehouse for integrating phenotyping, imaging an experimental data.