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Klin Padiatr 2013; 225(06): 331-334
DOI: 10.1055/s-0033-1358392
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© Georg Thieme Verlag KG Stuttgart · New York

Improving Outcomes for Teenagers and Young Adults (TYA) with Cancer

Verbesserung der Behandlungsergebnisse für Adoleszente und junge Erwachsene mit Krebs
D. Stark
1   Oncology, Leeds Teaching Hospital NHS Trust, Leeds, United Kingdom
,
I. Lewis
2   Alderhey Childrens Hospital, Childrens Services, Liverpool, United Kingdom
› Author Affiliations
Further Information

Publication History

Publication Date:
28 October 2013 (online)

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Abstract

The management of TYA with cancer is characterized by biological features in comparison to children. Therefore specialized treatment units have been established within professional structures of care for this group, and a European multidisciplinary framework for the treatment of TYA with cancer was founded.

Objectives are to promote interdisciplinary collaboration and provide strategic concepts to improve patient care centered to the special needs of this age group. Access to clinical trials for all TYA in the EU will be improved and research initiated, examining biology, epidemiology and health services.

Special goals of the interprofessional cooperation are:

  • Improvement in survival and the quality of survival, where TYA are disadvantaged by existing structures of care.

  • Provision of all the required expertise in ­dedicated and effective multiprofessional teams, sometimes across traditional healthcare boundaries.

  • Provision of an environment for care that meets the specific needs of TYA.

Different measurements are discussed improving outcomes for TYA is proceeding at different speeds in different parts of the world. In some there are established teams, bringing together paediatric and adult specialists from many healthcare professions, reviewing and contributing to the optimal care of all TYA with cancer as part of national health policy.

Zusammenfassung

Krebserkrankungen bei TYA zeichnen sich durch biologische Besonderheiten aus. Deshalb sind interdisziplinäre Behandlungsgruppen speziell für die Patienten dieser Altersgruppe geschaffen worden, die sich international zu einer Arbeitsgruppe zusammengeschlossen haben.

Allgemeine Ziele der TYA sind, die Besonderheiten der Krebserkrankungen in dieser Altersgruppe bei der Therapie zu berücksichtigen, den Herausforderungen der interprofessionellen Zusammenarbeit für eine angemessene Versorgung dieser Patienten gerecht zu werden und dem Wunsch vieler Patienten und den an der Behandlung beteiligten Professionen nach einer besseren Versorgung zu entsprechen.

Die speziellen Ziele beinhalten:

i ) Bestehende Strukturen verbessern, wenn diese das Überleben und die Lebensqualität nachteilig beeinflussen.

ii ) Die erforderliche Expertise in einem geeig­neten multiprofessionellen Team verfügbar zu machen, auch wenn dies über die traditionellen Gesundheitsstrukturen hinausgehen sollte.

iii ) Bereitstellung einer angemessenen Umgebung, die den spezifischen Bedürfnissen dieser Patientengruppe gerecht wird.

Hierfür wurden in den verschiedenen Ländern unterschiedliche Maßnahmen ergriffen. Verschiedene Wege zu Verwirklichung der integrier­ten Zusammenarbeit von pädiatrischen und internistischen Mitarbeitern werden vorgestellt.

Key words

cancer - teenager - young adult - specialist services

Schlüsselwörter

Krebs - Teenager - junge Erwachsene
 

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