Semin Speech Lang 2011; 32(3): 256-267
DOI: 10.1055/s-0031-1286179
© Thieme Medical Publishers

Community: The Key to Building and Extending Engagement for Individuals with Aphasia

Maura English Silverman1
  • 1Triangle Aphasia Project, Unlimited, Apex, North Carolina
Further Information

Publication History

Publication Date:
23 September 2011 (online)

ABSTRACT

The response by the aphasia community to the call of the Life Participation Approach to Aphasia Project Team to offer a framework for the management of aphasia was swift and expansive. Speech pathologists across the world accepted the paradigm shift from language goals within the clinic office to the short-term and long-term life objectives of their clients. The definition of service now included access to those communicative barriers that persons with aphasia face within their community. The recruitment, training, and shaping of that engagement must be individualized for successful (re)engagement. This article aims to present perspective on that process from a program that utilizes a unique center without walls concept.

REFERENCES

  • 1 Hersh D. Beyond the “plateau”: discharge dilemmas in chronic aphasia.  Aphasiology. 1998;  12 207-218
  • 2 Hersh D. “Weaning” clients from aphasia therapy: speech pathologists' strategies for discharge.  Aphasiology. 2000;  17 1007-1029
  • 3 LPAA Project Group (in alphabetical order: Chapey R, Duchan J, Elman R, Garcia L, Kagan A, Lyon J, Simmons-Mackie, N) .Life Participation Approach to Aphasia: a statement of values for the future. In: Chapey R, ed. Language Intervention Strategies in Aphasia and Related Neurogenic Communication Disorders. 4th ed. Philadelphia, PA: Lippincott Williams & Wilkins; 2001: 235-248
  • 4 Simmons-Mackie N, Kagan A, O'Neill Christie C, Huijbregts M, McEwen S, Willems J. Communicative access and decision making for people with aphasia: implementing sustainable healthcare systems change.  Aphasiology. 2007;  21 (1) 39-66
  • 5 Kagan A, Black S E, Duchan F J, Simmons-Mackie N, Square P. Training volunteers as conversation partners using “Supported Conversation for Adults with Aphasia” (SCA): a controlled trial.  J Speech Lang Hear Res. 2001;  44 (3) 624-638
  • 6 Lyon J. Coping with Aphasia. San Diego, CA: Singular; 1998
  • 7 Holland A. Recent advances and future directions in aphasia therapy.  Brain Impair. 2008;  9 (2) 179-190
  • 8 Pound C, Parr S, Lindsay J, Woolf C. Beyond Aphasia: Therapies for Living with Communication Disabilities. Bicester, United Kingdom: Winslow Press; 2000
  • 9 Holland A. Counseling in Communication Disorders: A Wellness Perspective. San Diego, CA: Plural; 2007
  • 10 Worrall L. Professionalism and functional outcomes.  J Commun Disord. 2006;  39 (4) 320-327
  • 11 Levine P G. Stronger after Stroke: Your Roadmap to Recovery. New York, NY: Demos Health; 2009
  • 12 Parr S, Byng S, Gilpin S, Ireland C. Talking about Aphasia: Living with Loss of Language after Stroke. Buckingham, United Kingdom: Open University Press; 1997
  • 13 Hilari K, Northcott S. Social support in people with chronic aphasia.  Aphasiology. 2006;  20 (1) 17-36
  • 14 Haley K, Womak J, Helm-Estabrooks N, Caigon D, Mulloch K. The Life Interests and Values Cards. Center for Aphasia and Related Disorders—UNC School of Medicine. Available at: http://www.livcards.org Accessed January 31, 2011
  • 15 Beukelman D, Garrett K, Yorkston K. Augmentative Communication Strategies for Adults with Acute or Chronic Medical Conditions. Baltimore, MD: Paul H. Brookes; 2007. Aphasia Needs Assessment Appendix and Form 6.2
  • 16 Tedeschi R, Park C, Calhoun L. Posttraumatic growth: positive changes in the aftermath of crisis.  Am J Psychiatry. 2000;  157 1712
  • 17 Holland A. Life coaching approaches to living successfully with aphasia. Presented at: the Clinical Aphasiology Conference; May 1, 2004; Park City, UT
  • 18 CarePages .Free patient websites, blogs, support and community: CarePages.com. (n.d.) Available at: http://www.carepages.org Accessed January 31, 2011
  • 19 CaringBridge .Free Patient Websites Connect Loved Ones During Serious Health Events. CaringBridge.org. Available at: http://www.caringbridge.org Accessed January 31, 2011

Maura English SilvermanM.S. CCC-SLP 

Triangle Aphasia Project, Unlimited

127 N. Salem Street, Apex, NC 27502

Email: aphasia@nc.rr.com

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