Zeitschrift für Palliativmedizin, Table of Contents Zeitschrift für Palliativmedizin 2018; 19(06): 299-304DOI: 10.1055/a-0667-0274 Palliativpflege © Georg Thieme Verlag KG Stuttgart · New YorkKOMMA – ein nutzerorientierter Ansatz zur Unterstützung von Angehörigen in der häuslichen Hospiz- und Palliativversorgung Christiane Kreyer , Sabine Pleschberger Recommend Article Abstract Buy Article Angehörige, die einen Menschen am Lebensende zu Hause begleiten, sind stark gefordert und gesundheitlich belastet. Der KOMMA-Ansatz ist ein innovativer nutzerorientierter Ansatz zur Unterstützung von Angehörigen in der häuslichen Palliativversorgung. Full Text References Literatur 1 Gomes B, Higginson IJ. Factors influencing death at home. BMJ 2006; 332: 515-521 2 World Health Organization. WHO Definition of Palliative Care. 2002. http://www.who.int/cancer/palliative/ 3 Friedemann M-L, Köhlen C. Familien- und umweltbezogene Pflege. 3.. Aufl. Bern [u. a.]: Huber; 2010 4 NICE. Improving supportive and palliative care for adults with cancer. The manual. London: 2004 5 Schneider U, Österle A, Schober D, Schober C. Die Kosten der Pflege in Österreich. Ausgabenstrukturen und Finanzierung. Wien: 2006 6 Nowossadeck S, Engstler H, Klaus D. Pflege und Unterstützung durch Angehörige: Report Altersdaten. Berlin: 2016 7 Wetzstein M, Rommel A, Lange C. Pflegende Angehörige – Deutschlands größter Pflegedienst. Berlin: 2015 8 Schmidt M, Schneekloth U. Abschlussbericht zur Studie „Wirkungen des Pflege-Weiterentwicklungsgesetzes“. Berlin: 2011 9 Kreyer C, Pleschberger S. Bewältigungsherausforderungen Angehöriger in der häuslichen Palliativversorgung. Eine Einzelfallstudie. Pflegewissenschaft 2015; 17: 645-654 10 Kreyer C, Pleschberger S. Delineating a phase model of palliative home care: a qualitative longitudinal study of family caregiving. Qualitative Health Research. in review 11 Funk L, Stajduhar K, Toye C. et al. Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998–2008). Palliat Med 2010; 24: 594-607 12 Stajduhar K, Funk L, Toye C. et al. Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998–2008). Palliat Med 2010; 24: 573-593 13 Totman J, Pistrang N, Smith S. et al. 'You only have one chance to get it right': A qualitative study of relatives' experiences of caring at home for a family member with terminal cancer. Palliat Med 2015; 29: 496-507 14 Brobäck G, Berterö C. How next of kin experience palliative care of relatives at home. Eur J Cancer Care 2003; 12: 339-346 15 Milberg A, Strang P, Jakobsson M. Next of kin’s experience of powerlessness and helplessness in palliative home care. Support Care Cancer 2004; 12: 120-128 16 Nolan M. Positive aspects of caring. In: Payne S, Ellis-Hill C. eds. Chronic and terminal illness: new perspectives on caring and carers. Oxford: Oxford University Press; 2001: 22-43 17 Holmberg L. Communication in action between family caregivers and a palliative home care team. J Hosp Palliat Nurs 2006; 8: 276-287 18 Ewing G, Grande G. Development of a Carer Support Needs Assessment Tool (CSNAT) for end-of-life care practice at home: a qualitative study. Palliat Med 2013; 27: 244-256 19 Ewing G, Brundle C, Payne S. et al. The Carer Support Needs Assessment Tool (CSNAT) for use in palliative and end-of-life care at home: a validation study. J Pain Symptom Manage 2013; 46: 395-405 20 Aoun S, Deas K, Toye C. et al. Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trial. Palliat Med 2015; 29: 508-517 21 Ewing G, Austin L, Grande G. The role of the Carer Support Needs Assessment Tool in palliative home care: A qualitative study of practitioners’ perspectives of its impact and mechanisms of action. Palliat Med 22 Grande GE, Austin L, Ewing G. et al. Assessing the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in palliative home care: a stepped wedge cluster trial. BMJ Support Palliat Care 23 Aoun SM, Grande G, Howting D. et al. The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trial. PLoS ONE 2015; 10: e0123012 24 Kreyer C, Bükki J, Pleschberger S. Development of KOMMA, a German version of the Carer Support Needs Assessment Tool (CSNAT) – the process of translation, cultural adaptation & validation. Eingereicht 25 Wild D, Grove A, Martin M. et al. Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Health 2005; 8: 94-104 Supplementary Material Supplementary Material Supplementary material
